"In Our Own Words" Virtual Poetry Event featuring Brain Injury Survivors & Caregivers Video
I am so excited to share the inaugural “In Our Own Words” virtual poetry event held last month featuring the voices of brain injury survivors and caregivers, hosted by Resilient Roots. You can watch the video here, and make sure to join us in April for the next “In Our Own Words” event on Zoom!
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©2025 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
The opinions expressed on this site are that of my own and not reflective of, nor supported by, any of the organizations that I am affiliated with.
Headed to Washington, D.C.!
Hair is done (by the AMAZING @trumane_hair_studio, seriously, you should have seen how crunchy it looked when I went in there 😆) so now I’m ready to head to D.C. with @bia_usa to advocate for the brain injury community by speaking with our legislators about some important initiatives we need their support on.
I’ve made my (packing) list, checked it twice, traveling while disabled is more naughty than nice! 😂 But regardless, Cazzy Claus is comin’, to toooowwwwn! Okay, obviously Christmas is my favorite holiday and bad jokes are my jam, but I’m taking this opportunity very seriously. It’s not often that you to get to be amongst this many individuals in the brain injury community, particularly while being able to speak directly to your representatives about the issues that affect us most.
I’m thinking about making a video sharing some of my trips for how I prepared for this trip in terms of packing-which is such a difficult thing to do when traveling (“What do I wear for this event?”, “What if we go out to eat afterwards?”, “What happens if it starts raining?”….“My silk press!!!”) but it’s even more difficult when you’re dealing with a brain injury or other disabilty. The cognitive load, not to mention the physical practicalities of packing and travel can be more than a challenge, so I think it would be helpful to share some of the things that make it more accessible for me.
You can head to biausa.org for more info about how you can support, even if you don’t have a brain injury yourself!💪🏽🧠
See you soon, D.C.!🎉
SEE WHAT’S NEW ON INSTAGRAM
©2025 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
The opinions expressed on this site are that of my own and not reflective of, nor supported by, any of the organizations that I am affiliated with.
The Double Invisibility of Being Black and Disabled
Standing in the aisle of the grocery store, I feel the presence of someone approaching me, coming dangerously close to where I’m standing. Inches away. Close enough that I can feel the warmth of their body heat. I then see a hand reach over in front of me to grab an item off the shelf. After which, the hand’s owner proceeds to walk away, the entire act occurring as if I weren’t even there.
Granted, I had been standing in that spot for a while, my head feeling like it was literally spinning as I tried to both get my bearings and remember why I was standing in that aisle in the first place as the symptoms of my traumatic brain injury began to worsen.
Now normally, I am not the one nor the two. A simple “excuse me” would have let me know that the person needed to get where I was standing, and I usually have no problem letting people know that in the moment. As a person of color living with disabilities for the last seven years as a result of being struck by a car traveling 48mph while crossing the street in downtown Phoenix, I sometimes wonder in times like that why people seem to be incapable of seeing me? Both literally and philosophically. It also makes me wonder why people don’t take the time to consider that I may have been standing there for so long for a reason other than to try to annoy the general public by taking up space for an unnecessarily long duration of time, when obviously I know that grabbing a can of beans off of a shelf is a life-or-death situation that requires immediate action, to the exclusion of basic human consideration.
Living with the effects of a traumatic brain injury, chronic pain, nerve damage and vestibular issues, (all so-called “invisible disabilities” because the effects of these conditions are not always visually perceptible), already often makes me feel as if the struggles and realities of my existence are not seen or considered. Although my disabilities are “invisible”, this occurs even when my status as a disabled person is made known. Add the fact that I’m a black woman, who, statistically speaking, is a part of a demographic that often gets ignored or discredited by the medical field, sometimes I feel doubly invisible. Doubly ignored.
According to a 2021 Pew Research Study, about a third of African Americans surveyed said that their pain has not been taken seriously (35%), or that their provider has rushed them (32%). (https://www.pewresearch.org/short-reads/2023/12/21/5-facts-about-black-americans-and-health-care/)
“Black Americans are systematically undertreated for pain relative to white Americans...findings suggest that individuals with at least some medical training hold and may use false beliefs about biological differences between blacks and whites to inform medical judgments, which may contribute to racial disparities in pain assessment and treatment.” (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4843483/) If medical providers hold false beliefs about blacks, they clearly are not seeing us accurately. Our pain, experiences and symptoms become “invisible” to providers, which can cause a myriad of issues medically, psychologically and emotionally for disabled African Americans.
According to a Pew Research report, “(55%) [of African Americans surveyed said]...they’ve had at least one of six negative experiences, including having to speak up to get the proper care and being treated with less respect than other patients.” (https://www.pewresearch.org/science/2022/04/07/black-americans-views-about-health-disparities-experiences-with-health-care/) Even as it pertains to one of my primary disability, a traumatic brain injury, the assessment, and therefore the visibility, of African Americans in this demographic is not accurate according to the research. “Some studies state that following a traumatic brain injury, members of minority groups have a more difficult time than whites in finding work and returning to social activities. Other studies disagree. Some researchers suggest that evaluation tools used by clinicians are to blame for the differences in scores. They suspect that the evaluation tools may be unintentionally biased against members of minority groups because they are written for and measure traits of the White culture.” (https://www.biausa.org/professionals/research/tbi-model-systems/outcomes-for-african-americans-and-whites-similarities-and-differences)
Even when presented with statistical data corroborating the assertion that African Americans still face discrimination in many different areas, including healthcare, I’ve found that numerous non-POC friends and colleagues remain in willful and determined disbelief. They make the conscious decision to negate my experiences and the experiences of other people of color. This begs the question, what more will it take for us to be believed? For us to be “seen”?
I can’t help but draw the parallel between the experience of living as a person of color and that of living as a disabled person. Not only does one affect the other, but they both present their own unique challenges in having the community at large see us in the totality of who we are within those demographics. In America, there is the cultural belief that anyone who experiences any kind of loss, tragedy or traumatic physical or emotional event should just “pull themselves up by their bootstraps” and move on in a way that seems productive to the general population. As a disabled person, that’s just not always possible. Especially in a society that, for the most part, has been built exclusively for non-disabled individuals. Thanks to The Americans with Disabilities Act and many vocal advocates, that is slowly beginning to change. However, much of the progress that has been made is now under threat under the current administration. Our symptoms and “limitations” as disabled persons affect every aspect of our daily lives, frequently in ways that other people don’t see. Sometimes, “pulling myself up by my bootstraps” means being in bed for two days straight when an intense migraine and chronic pain make functioning impossible.
I’m not asking for sympathy. I’m not asking for pity. I don’t think most African Americans or disabled persons are. But what I am asking for from non-POCs and non-disabled individuals is to have the empathy to consider experiences other than their own. To truly “see” us, you have to take the time to get to know us. You have to take the time to educate yourself with the resources that are readily available in order to learn about what life is like for us. And please, for the love of God, remember to say “excuse me”.
Resources
https://www.pewresearch.org/science/2022/04/07/black-americans-views-about-health-disparities-experiences-with-health-care/
https://www.biausa.org/professionals/research/tbi-model-systems/outcomes-for-african-americans-and-whites-similarities-and-differences
https://www.pewresearch.org/short-reads/2023/12/21/5-facts-about-black-americans-and-health-care/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4843483/
©2025 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
The opinions expressed on this site are that of my own and not reflective of, nor supported by, any of the organizations that I am affiliated with.
Jazz-The Soundtrack to My Disability Life
It was a calm and temperate Phoenix night. Clear skies. Mid-May, so it wasn’t unbearably hot yet. I was walking back to my car after leaving an event at the Phoenix Science Center, cosplaying as Poison Ivy as it was a “science of superheroes”-themed event. I pushed the button to cross the street. I had the right of way. As I entered the second half of the road from the pedestrian crosswalk, suddenly, BOOM! CRASH! I was struck by a car traveling 48mph. I was thrown 15’ up and 100’ forward from where the driver hit me. I sustained multiple injuries, some of which have resulted in long-term disabilities and conditions to include a traumatic brain injury, chronic pain, nerve damage and vestibular and vision issues, just to name a few. The driver never got out of his car and left me alone, broken and bleeding on the street until a Good Samaritan who witnessed the incident came to help me.
Jazz has become the soundtrack of my disabilities. There’s a song or artist for every mood, every experience, every setback and every triumph that I’ve been forced to contend with in the almost eight years since the traumatic accident occurred. I’ve always loved the motto, “life is a movie, starring you,” and if I were to choose the genre that best encapsulates and expresses my experiences since becoming disabled, it would be jazz.
Jazz is a difficult genre to clearly define because it encompasses a wide range of music spanning time, culture and region. According to Wikipedia, “Jazz is a music genre that originated in the African-American communities of New Orleans, Louisiana, in the late 19th and early 20th centuries, with its roots in blues, ragtime, European harmony and African rhythmic rituals.” (https://en.wikipedia.org/wiki/Jazz)
Artists such as Duke Ellington, Miles Davis and John Coltrane are familiar favorites of the musical style. Although often a male-dominated genre, the contributions of female jazz artists such as Ella Fitzgerald, Billie Holiday and Sarah Vaughn should not be overlooked; their influence on modern-day artists such as Diana Krall and Melody Gardot is apparent.
Jazz is a style of music that is rooted in improvisation. Performers may change melodies, harmonies or compositions depending on mood, audience participation and the general vibe in the room. Notes and melodies may change at a moment's notice, you never know what to expect and may never get the same live musical experience twice.
As a disabled person, I am no stranger to improvisation. The contemplative mood of Blue Mitchell’s song, “It Could Happen to You”, aptly named, melodically expresses the way that I constantly have to think of ways to adjust. The symptoms of my disabilities affect every aspect of my daily life, from self care to parenting and everything in between. Prior to the accident, I was an independent wellness instructor and single mom with a vibrant social life. Becoming disabled changed all of that, and I had to learn how to improvise to accommodate the effects of my disabilities. I constantly have to think on my feet and play it by ear just to make it through the day, a direct parallel to the way that jazz music encompasses improvisation.
I would be lying if I said that the question, “why me?” did not come to mind at times, especially in the early days of recovering from the accident. Every time I went to the doctor, it was more bad news: another diagnosis, another medical professional informing me of the negative long-term effects that I would be experiencing as a result of my disabilities and conditions. Interaction and collaboration are two key elements of jazz music.
Artists have an almost supernatural connection to both the music, and each other that creates beautiful pieces of instrumental art. Songs such as, “Have a Talk with God” by Henrik Gunde, Nicolas Kock and Karsten Bagge are excellent examples of several artists coming together to create something greater than what could be accomplished alone. Throughout my journey with disability, I have had to learn to lean on others for help. As a highly independent person, this was extremely difficult for me. But like the collaborations and interactions found in jazz music, once I learned to collaborate and interact with others for my well-being (primarily my immediate family), it created this beautiful mosaic of my current existence that’s greater than what I would have been able to accomplish on my own.
Because I finally learned to collaborate with others for assistance, I have been able to become a speaker and advocate, championing the issues that affect disabled persons, particularly those in the brain injury community. I collaborate with other survivor-advocates as a member of The Brain Injury Association of America’s Advisory Council. This would not have been possible unless I had taken a lesson from jazz music and learned to interact and collaborate, to lean on even, the people who are close to me in order to help me not only survive, but thrive despite my conditions.
And on that note (pun intended), It’s not all bad. Becoming disabled has shown me that I possess a strength and resilience that I didn’t know I had. The smooth, persistent melodies of “The Feeling of Jazz” by Duke Ellington and John Coltrane remind me of the fact that no matter what I’m facing-having to advocate for myself with doctors, dealing with the ableist misconceptions of others, debilitating pain, an uncertain future, I just keep on trucking. But unlike “The Little Engine That Could”, repeating “I think I can, I think I can,” my mantra has become, “I know I can, I know I can.” This song’s lilting cadence conjures up visions of me continuing to walk forward on this unchosen and unexpected path that I am now on with my disabilities and conditions.
At the 1976 Grammy Awards, Mel Torme asks “The Queen of Jazz”, Ella Fitzgerald, how she would explain what jazz music is to people. She replies that she thinks they can show them, and they go into a captivating scat performance, going back and forth, improvising notes and melodies, showcasing a beautiful explanation for something that is frequently considered to be undefinable. (view that performance here: https://www.dailymotion.com/video/x23t25p) That’s how I feel when I’m trying to explain what my life is like now that I’m disabled. There’s complications, back and forth momentum, highs and lows, joy, hidden pain even; but it all comes together beautifully to create the soundtrack of my life.
This journey began with a BOOM and a CRASH, like what we experience in the latter portion of Miles Davis’ “Nefertiti” after a mesmerizing, trance-like and consistent repetition of the melody in the first half of the song. The seeming dissonance that ensues is actually more of a controlled free-fall, which is exactly what my life as a disabled person has felt like. At times I may be “In A Sentimental Mood” (Thank you, Mr. Duke Ellington), but honestly, I wouldn’t trade this iconic symphony of a life with disabilities for the world. It’s been in this improvised, “take it as it comes and create something magical” experience that I’ve discovered a more marvelous version of myself. A version that’s allowing me to create something bigger than myself. If that’s not jazzy, then I don’t know what is.
©2025 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
Join Me at The Brain Injury Association of America's National Brain Injury Conference and Awareness Day!
From the Brain Injury Association of America:
“The National Brain Injury Conference and Awareness Day is less than two months away, and we’re excited to see familiar faces as well as newcomers to the event, like Cazoshay Marie.
Cazoshay is joining us this year because she recognizes how important it is for legislators to hear directly from brain injury survivors about the issues that matter to the brain injury community.
In addition to our annual trip to Capitol Hill, where attendees will have the opportunity to meet with their congressional representatives and advocate for brain injury causes, this year’s event will include a conference for brain injury survivors and caregivers, featuring educational breakouts, social events, and more. You can view the full conference agenda here.
Whether you’re an Awareness Day veteran, or a first-time attendee like Cazoshay, we can’t wait to see you on March 3-5 in Washington, D.C.”
©2025 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
Navigating the Holidays as A Parent Living with Brain Injury Webinar
Managing children's expectations, preparing meals, dealing with symptom flare-ups & sensory overload...there can be a lot to try to handle during the holidays as a parent living with brain injury. Resilient Roots creator & moderator Cazoshay Marie discusses these topics and more, as well as provides some suggestions for how to make your holidays more manageable & full of joy!
There will be no December meeting of Resilient Roots (enjoy the holidays!) Our next meeting is January 16th with guest speaker Taryn Barlow of The Well Brain!
©2024 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
Hope After Head Injury Podcast Interview
I was recently interviewed by Cristabelle Braden for the Hope After Head Injury podcast. We talked about finding what roots you after sustaining a TBI and how to go through the non-linear journey of healing with self-compassion, as well as some tools I’ve found to be very valuable throughout the process. You can watch or listen via the link below.
Don’t miss the next meeting of Resilient Roots Support Group for Parents Living with Brain Injury on October 17th at 5:30pm MST. We are having a virtual community movie night watching the short film, “Jelly Brain” followed by a guided discussion. All are welcome to this month’s meeting, even if you don’t have children or a brain injury. Hope to see you there!
See what’s new on the Resilient Roots Instagram:
©2024 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
The Importance of Social Media for the Disability Community
There are so many different aspects of the disability experience that able-bodied normies probably have no idea about. There were many things that no one prepared me for when I became disabled after being struck by a car traveling 48mph while crossing the street in downtown Phoenix. The extreme isolation was certainly one of them.
Image via CDC.gov
No one told me that the symptoms & limitations of my disabilities would cause me to miss out on so many things. I’m living with a traumatic brain injury, chronic pain, nerve damage & a host of other symptoms that make even completing simple daily tasks difficult. My teenaged son has stepped up in so many ways to help me do things that are now challenging or impossible for me to complete. All the symptoms that are associated with my disabilities & conditions make it very hard to get out of the house & interact with friends, or even to have them over to my home for visits.
Image via Black Girls Brunch
Where I was once very socially active, always at a brunch, exhibit opening or networking event as a highly motivated wellness professional, artist, single mom & outgoing introvert, all that came crashing to a halt as the car crashed into me, my body breaking the driver’s windshield as I was catapulted through the air 100 feet from where I was struck, landing on the cold, hard pavement. As the car crashed into my body, it also crashed into my active social life, leaving a path of destruction in its wake. If you’re curious, the driver never got out of the car to help me, but that’s a story for another day.
Two hours of reconstructive surgery from one of the top plastic surgeons in Arizona helped me not show too many visible signs of my disabilities & conditions
It’s been a long, hard journey to say the least. One that necessitated me entering counseling to help me not only deal with my severe PTSD, depression & anxiety that came about as a result of the accident, but also to help me reconcile the “old me” with this “new normal”, if indeed you could call it that. While I had friends that came to visit me in the initial time period after the accident, between the vestibular issues, the chronic pain, doctor & therapy appointments every day, all I could really do was watch woefully from my couch-bed where my family had me set up in order to care for me, as I saw my friends attending concerts, getting engaged, going on trips & doing all the things I used to do & be involved in that were now impossible.
My counselor suggested that I begin sharing about my experiences online. That was the last thing that I wanted to do. Before the accident I was active on social media, but all that stopped after the accident. The whole experience felt like one big nightmare that I couldn’t wake up from. In fact, I was having nightmares every night, reliving the horrors of the accident over & over again. So the last thing I wanted to do was lay myself bare for the interwebs to see when I already felt so vulnerable.
But with the encouragement of my family, I began sharing what I was going through here on my blog & social media outlets. Many of my friends were surprised & had no idea how hard things had become for me because my disabilities are considered “invisible disabilities”, meaning you can’t necessarily tell that I’m disabled by looking at me. Many didn’t (& still don’t) know the extent of my struggles because I don’t present as someone who is struggling. But I am. In so many ways.
As I began sharing my experiences online, it became a way for me to stay connected to people that I knew, but also to meet new people. Both disabled & able-bodied. I don’t have a huge following by any means, but social media became a way for me to have interactions with others when I’m not able to go out & have those interactions IRL because of my disabilities.
I experience extreme migraines, dizziness, sensory sensitivities, cognitive issues & more due to my traumatic brain injury. Noises, lights, stimulation, all things you encounter in the world at large are things that hinder me from social activity. Accessibility is a huge issue for those living with disabilities & while the goal is of course to be able to go out into the wilds & have real interactions, sometimes, for various reasons, if you’re disabled that’s just not possible.
Having a community & interactions online can help solve the issue of isolation for individuals living with disabilities. We can chat, text, share pictures & updates & maybe even find others who are living a similar experience to ours. This is why I’m starting the Resilient Roots Support Group for parents living with brain injuries. We’re meeting monthly online on Zoom so that any parent, anywhere can participate & not be limited by location, access or ability.
So if you’re disabled, it may be hard to go online & see your friends doing all the things you wish you could be a part of, but try to reframe the encounter to recognize that you are still participating in your own way by interacting with the posts online. And don’t be afraid to share your own exploits as a person living with disability. Who knows who you will educate & inspire? It might not be IRL experiences, but I believe even online social interactions are better than no interactions at all, & through social media, you have the ability as a disabled person to curate your own community on your own terms whereas much of our lives feel like they are being lived on anything but our own terms.
So send that tweet, make that TikTok video & post that picture on Facebook, your community is waiting for you.
I’d love to connect with you! Find me on social media here:
©2024 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
Brain Injury Association of America: My Brain Injury Story
I’m honored to have had the opportunity to share a little bit about my journey with brain injury with the Brain Injury Association of America. I talked about how my family has been a great sense of support & much more in this feature! Click the link below to read the full story.
Dating, Disability & Disclosure
Dating, Disability & Disclosure: Dating While Disabled. There's a lot to consider & I just covered a little bit. I chose not to edit this video so you can get a small glimpse of how my disabilities can affect my thinking & speaking. Overall I think I got my points across though.
I’d love to know your thoughts on this aspect of living with disabilities, leave me a comment & let me know what you think.
©2024 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
Disabilities As Superpowers
Question: What do J’onn J’onzz, Professor X & Geordi La Forge all have in common?
Answer: They all have disabilities & are also highly gifted!
Image Credit: DC
Growing up, I was immersed in the fantastical worlds of superhero stories, comic books, & sci-fi shows & movies. In many instances these stories featured characters with extraordinary abilities, but what often fascinated me most were the ones who grappled with disabilities, yet still managed to shine as heroes. Characters like the Martian Manhunter, Professor X, & Geordi LaForge demonstrated that disabilities could be integrated into their identities, oftentimes even transforming them into valuable superpowers. Little did I know then that these stories were not just flights of fancy but reflections of real-life potential that I would have the opportunity to further explore after becoming disabled myself as the result of a life-altering traumatic accident.
Image Credit: Marvel
Image Credit: Paramount
In May of 2023, I had the opportunity to speak at the National Space Society’s International Space Development Conference. I shed light on an unconventional idea: disabilities can be superpowers, even in space. Historically, NASA's strict physical requirements have excluded individuals with disabilities from its astronaut program. However, a fascinating experiment in the late 1950s involving deaf individuals, known as the "Gadaullet Eleven," revealed an unexpected advantage. Their immunity to motion sickness due to inner ear impairments showcased how disabilities can offer unique strengths, and even advantages over able-bodied astronauts, in the field of space exploration.
The Power of Disability
In my research for my talk, I found very interesting information about how the plasticity of the brain allows for remarkable adaptations. When one sense is lost or absent, the brain compensates by enhancing others. This phenomenon, documented in a Stanford article, means that individuals with disabilities often develop heightened abilities in other areas. For example, blindness can lead to enhanced auditory awareness, making individuals more attuned to sounds around them.
My talk at the National Space Society’s International Space Development Conference
Harnessing Cognitive Diversity
Including individuals with disabilities in the design and planning of communities, events & environments offers invaluable insights. Our everyday experiences navigating accessibility challenges equip us with a unique perspective on designing inclusive environments. By incorporating the feedback of disabled individuals early in the design process, you can also help to avoid the need for costly retrofits later on down the line.
Pictured with Rod Pyle, Author, Editor-in-Chief, Radio Personality, Keynote Speaker for IBM, Smithsonian, NASA, BAE Defense, and others who also worked on the set of Star Trek!
Embracing the Potential
Often, disabilities are only limitations because society constructs them as such. Consider this: are disabilities inherent flaws, or products of an environment designed without diverse needs in mind? Reframing our perspective unveils new possibilities. Just as the deaf individuals in NASA’s experiments flourished in adverse conditions, our disabilities can propel us to creative solutions and inclusive designs.
Instead of viewing disabilities as limitations, why not explore how they can be utilized as superpowers? By harnessing the unique strengths that individuals with disabilities bring to the table, we can enhance the efficiency & inclusivity of the ways in which our world functions. Including disabled persons in these vital conversations not only expands our possibilities, but also fosters a more diverse and equitable future for all.
Conclusion
The examples I’ve shared here offer just a glimpse into the potential of disabilities as superpowers. Disabilities are not hindrances; they are superpowers awaiting discovery. By embracing the experience & expertise of those with disabilities, we can create a vibrant future that is truly accessible to all. As Professor X once said, "You have the chance to become part of something much bigger than yourself." Let's seize that opportunity and pave the way for a more inclusive journey into the future.
Pictured at my talk at the National Space Society’s International Space Development Conference
Sources
1. Stanford University School of Medicine. "Supersensors: How Loss of One Sense Impacts Others."
2. NASA. "How 11 Deaf Men Helped Shape NASA's Human Spaceflight Program."
3. Center for Universal Design. North Carolina State University.
4. Povinelli, Elizabeth. "The Case for Disabled Astronauts." Scientific American.
5. Astro Access. "About."
©2024 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
“Disabled & Elegant”
I have struggled these past few months with keeping my blog updated. Both physically & directionally. I’ve been endeavoring to post on my TikTok every day, have become an active member of the Brain Injury Association of America’s Advisory Council, have speaking events scheduled & I have an amazing Super Senior who is active & preparing for college. Needless to say, all that has been taxing on me physically & I haven’t been able to keep up with posting here.
I’ve also struggled with the direction that I want to take the blog in. I don’t feel like my previous posts, although many have been popular (“The Gentlemen’s (Southern") Spicy Pickled Eggs” from 2022 remains a top hit), I’m in a different place style-wise, & mentally as well.
When talking all this out with my Advisor (aka my much cooler than me Gen Z son), he said, “make it be about how you’re disabled and elegant. That’s you.”
Could it really be that simple?
He’s not wrong, that pretty much encompasses where I’m at in life. As a disabled person, especially as one living with invisible disabilities, there was a big part of me that felt like I had to present a certain way. Not dishonestly, but certainly holding back & not showing the real me for fear of judgment & negative reactions. (Which I have experienced more than my fair share of as a disabled person.
The real me loves fashion, luxury beauty (luxury anything really), etiquette, entertaining & dressing up for no reason other than that I’m grateful to be alive & realize what a blessing that is. Especially after being struck by a car traveling 48mph while crossing the street in downtown Phoenix. A traumatic event that could have easily taken my life. I’m no longer saving things for a “special occasion” because every day that God gives you is a special occasion.
Going forward, this blog will share even more about my experiences of living with disability, all from the perspective of an individual #SurTHRIVE-ing with elegance, grace & the vulnerability of showing who I really am as a person. Secondhand Chanel pumps and all. (Eco-friendly & cost-effective!)
All this means that there will still be recipes, but also tips for hosting easy & elegant dinner parties (hello, cloth napkin folding!) & maybe some outfit & beauty posts added for good measure. And of course I’ll be talking about life as someone living with traumatic brain injury, chronic pain, nerve damage & more.
I hope you’ll join along with me on the next part of my journey.
©2024 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
10 Dinner Party Conversation Starters
I did not realize it had been so long since I’ve posted here on the blog! Living with disabilities, there’s only so much I can do, so some things don’t get as much attention, and the blog is clearly one of them lol.
I’ve primarily been posting on my social media, TikTok to be more precise. With my traumatic brain injury and chronic pain, it’s a little easier to be able to post short-form videos that don’t take much editing rather than to sit down and write out a full blog post complete with pictures.
One thing I’ve been sharing about on my social media is the comeback of the popularity of the dinner party! I am so excited to see that this is a thing because for me and my family, it really never went anywhere.
Bringing people together over a meal will never go out of style as far as I’m concerned. For today’s post, I have a fun little accessory you can use at your next soirée (did I mention that I’m also challenging my TBI brain by learning French?) They’re conversation starter cards. Whether there’s a lull in conversation or you just want something fun to help you and your guests get to know each other a little better, feel free to print these off and use them at your next dinner party.
©Cazoshay Marie, 2023. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
Brain Injury Alliance of Arizona Rays of Hope Conference: “When Recovery Is A Family Affair
More Coming Soon…
©Cazoshay Marie, 2023. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
National Distracted Drivers Month
Trigger Warning: Photos of facial trauma and injury after pedestrian-auto accident are shown in this post.
April is National Distracted Drivers Month, with the last week (April 23-29) being National Victims of Crimes Week. I couldn’t let this month end without sharing my personal experience with both of those traumatic subjects.
On May 19th, 2017 I was struck by a car traveling 48mph by a distracted driver who claimed to not have seen me as I crossed the street in a pedestrian crosswalk in downtown Phoenix.
The above photo shows what I looked like in the hospital after one of the top plastic surgeons in the state of Arizona spent two hours sewing my face back together. I sustained numerous injuries from the accident which have also resulted in several disabilities, including a traumatic brain injury, nerve damage and chronic pain-the effects of these conditions I deal with every single day.
Fast forward to 2023. Although my “invisible disabilities” still severely limit my activity, God has truly blessed me. I am grateful that I survived the accident at all, even though I must live with the negative effects of it every single day. The same night that I was hit, a man on a bicycle was also struck by a car but unfortunately he did not survive. So even though it’s difficult, I count myself blessed. Especially as a single mother, living with disabilities is not easy, but through my faith, family and friends I am able to endure.
Although I am unable to work due to my disabilities, when I am able to, I do speaking engagements and disability advocacy with the goals of not only educating the world about what the disability community faces (and how to make the world more accessible for us), but also about overcoming any kinds of adversities someone may be dealing with. The advice applies even to able-bodied persons. And I show you how to move forward with elegance and sparkle of course because that’s what makes all the difference, right? 😉
You can see the Events page for my upcoming speaking engagements, including the Rays of Hope Conference in Phoenix, Arizona and the International Space Development Conference in Frisco, Texas. Feel free to reach out to me and be sure to join me on my social media outlets where I share more lifestyle and disability content. Keep growing and glowing, friends!✨
©Cazoshay Marie, 2023. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
D.I.D. with Cazoshay and its materials are not intended to treat, diagnose, cure or prevent any disease. All material on this blog is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
Resolutions aka More & Less 2018
Resolutions, we've all made them. And in all honesty, we've all broken them too. According to the University of Scranton, research suggests that just 8% of people achieve their New Year's goals. U.S. News shares that 80% of resolutions fail by the second week of February. (So much for cutting carbs in 2016!)
Percentage of Resolutions Made in 2017
Last year (2017) my primary resolution was to be able to take a compliment (without saying anything negative about myself in response). Honestly, this was hard for me to do, but an important practice to implement.
Below is a chart of the most popular resolutions for 2017. This year I did one of my favorite ways of setting goals for the new year, and that is making a More/Less list. It's simply a list of things I want to do more of to replace not-so-positive habits.
Image via: StatisticBrain.com
We're five months into the year, how are your resolutions going? One of my favorite quotes is "every second is a chance to turn your life around," so keep in mind, each day is an opportunity to start over again. Every day your have the opportunity to get a little closer to being the person you want to be, living the life you want to live. It's a process, so remember to be gentle with yourself and I pray that 2018 is your best year yet!
©2018 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Cazoshay Marie with appropriate and specific direction to the original content.
This material is not intended to treat, diagnose, cure or prevent any disease. All material is provided for educational purposes only. Always seek the advice of your physician or another qualified healthcare provider for any questions you have regarding a medical condition, and before undertaking any diet, exercise or other health related program.
Update: Art+Life
©2017 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this image without express and written permission from this blog’s author and/or owner is strictly prohibited.
Coming from a family of creative individuals, art has always been a part of my life in one form or another. After a traumatic experience as a child, art became not only a form of self-expression, but also a form of therapy & even of communication as I strove to make sense of the world around me. On May 19th while leaving an event at the PHX Science Museum I was struck by a car traveling 45 miles per hour while walking in a pedestrian crosswalk. I was thrown 15 feet in the air & 100 feet forward. Although my injuries were extensive & my recovery is ongoing, I’m blessed to still be alive & know that God truly has a purpose for my life.
Until very recently, due to the severity of my vestibular injuries, I have been unable to create art. To have lost my ability to express myself in that way was devastating; especially during this difficult & uncertain time of healing. Art has always been an outlet of expression for me as far back as I can remember, & to have that taken away as a result of the accident was emotionally challenging.
I’ve now been cleared to begin creating art again on a limited basis, & the accident has had a profound influence on my style as an artist. Before the accident, one thing that made me stand apart from other artists is that I did not have a finite, consistent style in my drawings & paintings. Even within the same medium, my art varied so much from piece to piece that it was not obvious that the same artist created them.
I do still believe that the variance in my art style provides for visual interest and allows for the evolutionary process to be at the forefront of my development as an artist and individual. That being said, since the accident, I have specifically been exploring the style of continuous line drawing. I perceive a direct parallel between continuous line drawing & the process of life itself.
©2017 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this image without express and written permission from this blog’s author and/or owner is strictly prohibited.
With continuous line drawing, a single, unbroken line is used to create the piece. You at times have to stop & look at where you’ve been in the piece, to see where you are going. You never lift your pen or brush to stop & change what you are creating; meaning that it might not end up the way you wanted or originally envisioned, but you keep going & it ends up being something beautiful. Life, too is a continuous journey. You sometimes need to stop & look at where you’ve been to see where you are going. And although your path may not end up the way you envisioned, if you persevere & keep going, it will end up being something beautiful.
Now that I am cleared to begin creating art again on a limited basis, I'm excited to further explore & cultivate my career & expression as an artist. By using art to be connected to & serve the community, I will be able to not only use it to help heal myself, but to help others heal & peel back the layers to discover their own true essence.
You can see more of my art here, and I look forward to sharing more with you in the near future. 💕
©2017 Cazoshay Marie. All rights reserved. Unauthorized use and/or duplication of this image without express and written permission from this blog’s author and/or owner is strictly prohibited.
The Launch of Community Hip Hop Yoga
Last week I had the privilege of launching my very special Community Hip Hop Yoga classes. Launched in conjunction with my 30th birthday, this class is one that's near and dear to my heart. I offer this class at a discounted rate so that cost won't be a hindrance for those without a ton of disposable income to devote to health and wellness. I'm a single mom so trust me, I get it. My goal is to make health and wellness accessible to our communities and help alleviate some of the issues that we face in the process.
Yoga is a safe space. Besides the obvious physical benefits, so many of our issues (physical and otherwise) relate back to stress and the internal pain that so many carry with them on a daily basis. Through my classes, students have an opportunity to take time for self care and to mentally and emotionally let go of things that are not serving them.
This class is fun! I'm not your typical yoga instructor and the soundtrack for the class makes that very obvious from the beginning. Everything from Yasiin Bey to Erykah Badu; Common, Snoop Dogg and of course, A Tribe Called Quest; I encourage my students to laugh, dance and sing their way through class. Hey, it's about having a good time, and if you're singing (or rapping!), you're breathing!
This class is just the beginning. Soon I'll also be offering raw vegan food workshops and other community wellness events, some in partnership with other amazing wellness professionals and groups. I'm also taking my classes on the road and will be posting details soon about bringing DID with Cazoshay to your city!
